Kayla was born with Left-sided Congenital Diaphragmatic Hernia (LCDH). When she was born she was in the NICU for a total of 55 days. She reherniated two years later, had her repair surgery in May 2011 and spent 11 days in hospital recovering. She is a tough little girl and we are truly blessed to have her here.
I would like to offer my condonlences to baby Kaden and his family. I'm so sorry for their loss, my thoughts and prayers go out to you.
I have to say in times like this- I thank god for what I have been blessed with - and if it seems I have done nothing but complain about Kayla still in the hospital - I really try hard not to. I am very lucky for what god has blessed me with and I could not ask for more! I have a beautiful new daughter who makes progress everyday, and new friends in the NICU - Baby C's parents and Baby J's parents- and all the great nurses in the NICU, I am very blessed!
As for Kayla- she is super cute! :) I keep forgetting my camera at the NICU so as soon as I remember it I can post more pictures. I am having a hard time catching her smile on camera because I rarely have the hands to grab the camera and play with my daughter at the same time- I am trying tho- and it seems when she is in her crib- I will play with her- and she'll smile- but I don't have the camera in the right spot and she stares hard core at the camera and won't smile when it is on her- just as soon as I pull it away.... little stinker! However, she smiles all the time. Don't get me wrong she also throws a fit when she is not happy with something. She knows what she wants- and she knows exactly how to get it. She absolutely loves her swing, and her vistors... I have heard she loves Jan- one of the nurse practioners! I don't know what I'll do when I get her home and she won't have all the nurses to talk to.
She is now up to 60 cc and she is OFF her hyperal and lipids. Sometimes when it is feeding time - and she isn't completely starving- she will let me put the nipple in her mouth, and then looks at me and smiles the biggest smile... she is so cute but the nurses tell me not to play with her then, it's business time, not play time. It's soooooo hard- but she has to eat! :) She is still at the .6 fentanyl- which is frustrating but she'll get there- eventually!
I also want to say I'm super proud of Charlie- He is doing better with feeding and making his mommy happy with a little bit of breast feeding!! :) I know Kayla is missing her bf! :) I also want to thank Baby C's parents for being there for me- my husband is gone thru-out the week due to work, and I am pretty lonely- they keep me company quite often which I appreciate so much. I'm not sure what I would do without them... they have been there for me from the start- so thanks guys! You are amazing!