Kayla Mae Olmstead

Kayla was born with Left-sided Congenital Diaphragmatic Hernia (LCDH). When she was born she was in the NICU for a total of 55 days. She reherniated two years later, had her repair surgery in May 2011 and spent 11 days in hospital recovering. She is a tough little girl and we are truly blessed to have her here.

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Scary Thoughts-

So the day after they took Kayla off the fentanyl they put her back on it- she was soo agitated- and Dr. R was baffled that they were using morphine to help her- because it wasn't- so they put her back on a less concentrated fentanyl- and have yet to ween her from that one. So frustrating. She is doing much better tho- she is eating her 35 cc's easily and that means she is getting closer to getting OFF the hyperal and the lipids, closer to getting her PICC line out! :) I was talking to Dr. B today about Kayla going home, not that she is any time soon, just had a few questions about what to do when she got home. I was told no visitors- no co-workers, and especially no kids! I was told basically only grandparents- Dr. B said that if Kayla catches a cold it could be fatal- I have watched my nieces and nephews for a while now and they seem to be sick quite a bit... how do you keep a baby from getting sick? I'm so stressed with this bit of info- for some reason I thought once we were home, we were ok. Now I'm real nervous and not quite sure I ever want to leave the hospital!

5 comments:

Maxton's Mommy said...

Liz, Nayeli's mom would probably be good support for this... they have been sheltering her from the outside. A pain, I am sure, but she would be my go to person. :-) There is a link to their blog on my page if you haven't found it already! Thinking of you guys!!!
Ashley

Laurie said...

Scary thoughts indeed! Just know that all of us will support you in any way necessary - even if we have to watch Kayla through the windows! :) So very glad she is doing better! Love you all!!

Liz and Shane said...

Hi Kathryn,
Kayla is beautiful. I am so glad she is doing well. I would be happy to give you advice. I will email you.
Great news on going home soon now. I am going to add Kayla's blog to Nayeli's blog list. I hope you don't mind. Our little girls are truly Warrior Princesses.

SHARON ANN said...

My Dear Kate;

Keeping your daughter safe when she comes home is all that matters. You MUST enforce all the rules that the Dr's give you . Keeping Kayla germ free is very important. Her immune system will not be up to par for awhile. Time will go by fast my Dear. Just stay strong. You have no reason to fear coming home.Remember you have the Grandparents that will love to come over and take their shift.Never be afraid to ask for their help either. That is what they are there for. Just pray to the God above and he will help you and Kayla through this. You know several years ago I had the unfortunate time to be in the same hospital you are in. I was there for my son who had been given the last rights. I remember that there was a lovely Chapel in the hospital. I spent a lot of my free time there. Prayer's will help. Go try it and see how much better you will feel. Love Aunt Sharon

LARRY said...

Hi Kala, this is your great uncle Larry but u can just call me uncle Larry. glad to hear you are doing great, we have alot of pictures of u , sure are a cutie, I have been updated almost every day from your grandpa (jerry ) on how u are doing.He sure likes to talk about u,You sure know how to put a smile on his face.I cant wait for u to come so I can hold u, ( when the time is right )I am sure there will be a line to wait in. Tell your mom & dad that we will do anything that needs to done, even if we can just peek in a window to see u. We pray for u every day, Iam sure we will see u soon. Lots of kisses & Hugs
Uncle Larry & Aunt Terry

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