Kayla was born with Left-sided Congenital Diaphragmatic Hernia (LCDH). When she was born she was in the NICU for a total of 55 days. She reherniated two years later, had her repair surgery in May 2011 and spent 11 days in hospital recovering. She is a tough little girl and we are truly blessed to have her here.
So the day after they took Kayla off the fentanyl they put her back on it- she was soo agitated- and Dr. R was baffled that they were using morphine to help her- because it wasn't- so they put her back on a less concentrated fentanyl- and have yet to ween her from that one. So frustrating. She is doing much better tho- she is eating her 35 cc's easily and that means she is getting closer to getting OFF the hyperal and the lipids, closer to getting her PICC line out! :)
I was talking to Dr. B today about Kayla going home, not that she is any time soon, just had a few questions about what to do when she got home. I was told no visitors- no co-workers, and especially no kids! I was told basically only grandparents- Dr. B said that if Kayla catches a cold it could be fatal- I have watched my nieces and nephews for a while now and they seem to be sick quite a bit... how do you keep a baby from getting sick? I'm so stressed with this bit of info- for some reason I thought once we were home, we were ok. Now I'm real nervous and not quite sure I ever want to leave the hospital!