Please everyone understand CDH Family is not an organization. This website is just to help others, support others and provide information. CDH Family is like my second blog- a blog where I am trying to include all CDH'ers out there in the world.
If you see on CDH Family that I don't have a blog listed- please let me know as I'm trying to get EVERYONE!
Again- this site is based solely on how I felt when I searched for information on CDH when I first found out- I didn't find much and what I did found, sometimes wasn't true or it was misleading.
You can always just leave a comment here- if you don't want me to post your blog please let me know. As I do not want to offend anyone else by not asking their permission...
2 comments:
I am mom to Dakota (RCDH survivor born 12-25-2008). Like you, I am a total blog follower/stalker/lurker!! I follow all of the CDH stories I can find and celebrate, pray, cry, hope, empathize, remember, etc with their stories. I wanted to compliment you on making a website and doing a great job in keeping track of all the babies blogs! I love Kayla's story and am so glad she is doing so well!!! I don't have a blog for Dakota. I should! I keep meaning to!!! She was born 7 weeks early so I never got one up an running before her birth like I meant to ... and the days just pass! So I admire you and the other parents that take the time and effort to share your stories with us! They give us hope and comfort!
Thank you for all your hard work and love!
Jennifer
jennifertrafton@hotmail.com
Kate,
I think you're doing a great thing by making a valuable resource for other parents. Keep it up, and don't get discouraged if some don't want to be part of it. good luck with it!
Beth
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