Kayla Mae Olmstead

Kayla was born with Left-sided Congenital Diaphragmatic Hernia (LCDH). When she was born she was in the NICU for a total of 55 days. She reherniated two years later, had her repair surgery in May 2011 and spent 11 days in hospital recovering. She is a tough little girl and we are truly blessed to have her here.

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The New CDH Info/Support Website-

I know there are a lot of websites out there that a lot of you have made to help people become more aware of what CDH is. Well I guess it is my turn as I am attempting to put together a new website.
This is def. a site in progress- I'm still putting together the information and figuring out how I want to present it. What you may see now may not be there later... :) However I wanted to share it with you as you may have some good ideas about what should def be on the website. I am making this website for all new CDH mothers- a site I would have liked- knowing of all of your blogs while pregnant, may have helped me a little. I am by no means the search engine whiz- so that is probably why I did not find your blogs until I met Vince and Patty (after we had Kayla...thanks guys!! :))
Eventually I would like this site to be a great source for all CDH families to come together and talk- we have our own separate blogs that we, here and there, comment on.. but I thought it would be nice to have a place for us all to go- and talk about our issues as they arise... instead of posting and hoping someone out there can help. Don't get me wrong- the blogs are fabulous... I just thought it would also help us to get to know each other a little better as we do share something very HUGE in common and yet most of us will never meet.
Anyway this is just a thought and as I think it's put on site- but I often change my mind and change very often. :) So if you have any input- please let me know. I'm trying to put ALL blogs on the website as well- it seems as tho everyone has someone different on their blogs so I will stealing the sites off your website- if you mind, please email me- olmstead161@gmail.com - and even email me if you have suggestions.
Ok K is awake now- short nap! jeez-a-loo!! :)

1 comments:

Vince and Patty said...

Kate - - I need to talk to you because I had a brainstorm the other day that I was going to try to tackle. Similar to this idea, but I dont know if it can be done through a website format as opposed to a blog. We will have to discuss! :-) The site does look nice!

:-) Patty

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