Kayla Mae Olmstead

Kayla was born with Left-sided Congenital Diaphragmatic Hernia (LCDH). When she was born she was in the NICU for a total of 55 days. She reherniated two years later, had her repair surgery in May 2011 and spent 11 days in hospital recovering. She is a tough little girl and we are truly blessed to have her here.

I'm Growing, I'm Growing!

Lilypie Fourth Birthday tickers

Scary X-ray

On Wednesday, we had to take Kayla down to Syracuse for her year appt. with her surgeon.. which was pretty much just an x-ray and a "hey how is everything going" with Dr. R. Well.. that "hey how is everything" was a "hey so the x-ray looked a little strange to me."  UM YIKES!! Mama Olmstead does not like to hear anything like this.. so of course I immediately panicked! Dr. R didn't seem too concerned but he listened to her anyway and said she sounded great- didn't hear bowels up in the chest or anything.. he just said she sounded "great"!

Now there was also confusion with the x-ray technician.. apparently the last time we were there, the technician labeled the sides wrong.  Therefore it was confusing to the technician on Wednesday- so when Dr. R got that all figured out he came back to us and said I really don't think she's reherniated. He proceeded to show us the x-ray- and where the gortex patch was - it was high- and not at the same level as the diaphragm  - the real diaphragm can move normally, but the patch does not ... does not function like that.  Dr. R said that her patch appears to be thin and she so small that it's hard to see much and it will be easier to tell when she is older - so he thinks in 6 months he will be able to see better.

So pretty much we were told to watch her- and they would check up again in 6 months.  It's still a little scary to think about her reherniating but for now all we know is she is doing well.  However, since he didn't want to do another x-ray that same day, or even in 3 months makes me feel a little at ease seeing how if he thought even a little bit that she had reherniated that he would have done the x-ray sooner than 6 months.

On a happier note- here are some cute pics of K at the playground.. she LOVES the swing!! :)



Jennifer Tenney said...

Dakota has the exact same thing!!! ABout 9 months ago her x-ray showed that her diaphragm on the patch side was "elevated." Same thing, Dr. Kays didn't see anything above the diaphragm and just wanted to keep any eye on it. He said sometimes the patch just stretches and that is fine. 3 months later, she had another x-ray and it still looked fine, and a little less elevated. He didn't seem worried about it at all and wanted to see us in 9 months after that (now a few months). Everytime we go to the pediatrician, I ask her if she can hear anything in Dakota's chest and she always says no, everything sounds perfect. It is so nerveracking to worry about reherniation, but so far so good!!!!! So, just wanted to say ... right there with ya!

Liz and Shane said...

that must have been scary to hear that. I am so glad to hear everything is ok. I love her smile on the swing. She has a contagious smile. what a cutie!



Blog Archive