this weekend Kayla got to play with her cousin Maddy at Nina and Papa's house!! It's been 6 months since we have been there, she was excited!! 

and play around the pool (can't go swimming yet, so daddy just dunked her legs in.. I was quite nervous with the stretch to her belly, but she seemed to love it) 

Today is the 17th day of recovery... and she still has some issues.  The tape has not completely fallen off yet and I think it's pulling her skin.  She had some trouble before her nap today, tossing and turning, crying, so I went up to check on her, and she was so upset- she said something about the pillow and her boo boo hurting- I didn't catch much of what she said- she was crying to much.  But I thought she was too uncomfortable when she tried to sleep on her tummy.  But I don't really know? Maybe the tape was pulling her skin?  Maybe her incision still hurts (which it really shouldn't)... It's just so hard to know. She sometimes says it hurts when I really don't think it does- every time we take her shirt off she throws a fit- doesn't want to be touched, doesn't want us to look at her tummy - we really have to convince her we aren't going to touch her boo boo or hurt her. :( It's really quite sad. :( I did convince her today to finally take off the chest tube "band-aid".  But in order for it to come off, I had to tell her she could do it... and she did.  But when we pulled it off, the scab came with it- EWWWWWWWWWW talk about vomit!! It was a big scab, and now it look like a hole in her side... I was quite worried it wasn't ok... Jer says its fine, but idk... it's gross.... but she seems fine.  Her incision looks ok- and most of the tape has come off but she's still quite bothered by the ones that are there.

She also went to the Memorial Day Parade in Canton .. we met Mema and Deda there.. she had a great time! 

yay! I got a flag!! :)

She is doing great though.  She plays like normal, she's starting to get more energy and be able to do more.  She still isn't running like usual, or spinning around- but yells at Lily and throws a fit when Lily touches her-so that's pretty normal.. :)

We even went to Mema and Deda's house for a bbq this weekend...and she is eating more it seems.. maybe it's because I'm watching how much she eats so she doesn't puke, but it seems she wants to eat non-stop.  She eats a TON of applejacks, LOVES her muffins, and here she is eating dried fruit... Loves the Gerber style! :)  She also devours her toast, and hot dogs.  

She isn't 100% but she's getting there.  June 8 is her post-op appt.  Another x-ray and check up - hoping she doesn't freak out ... bc she freaks out at home just looking at her tummy- so not really looking forward to this appt. 

'cute face' 

So tonight was hard on Jer and I.  Kayla obviously didn't want to go 'night night' .. which is a normal thing... but she eventually comes to terms with it, and picks up Dolly and asks "carry me". But tonight, she wanted to carry these stupid pretend CD's that go to her music toy.. and I said 'no'... HOW DARE I?!!? Ugh- she cried hysterically, and then of course started her gagging thing- meaning she was going to vomit... (see mary I remembered not to use the word puke hehe)  And she did a little- but it was just saliva.. I think.  But the only way to get her to stop and calm down was to give back her fake CD's..

She is getting pretty spoiled at the moment- she is still supposed to be considered in recovery- and her papers to go home say no strenuous activity- well isn't crying hysterically considered strenuous?? Don't you need that dang diaphragm for that? ugh.. it's so hard!! Don't get me wrong, she really is doing much better.  She is way more herself- still not totally Kayla- haven't seen her run... or spin, or  be completely crazy- and she doesn't like her shirt to come off.. or show off her belly! :( I'm trying to make her boo boo cool- but she's not having it.

We have no other choice, we must spoil the poo out of her to make sure she stays calm.. which is SOOOO hard... bc when she is totally fine, it's going to be that much harder!! On the plus side- I thought I was going to have to re-train her to go on the potty- but she has not regressed at all.  She only wet several diapers one day at the hospital.  Ever since, she has gone on the potty.. and she's pooped every day w/o Miralax.. it may be a once a week thing? We haven't figured it out yet- but we don't want her to get backed up again. :(

playing with Lily- We'd tell her to make Lily laugh- and all she had to do was look at Lily and Lily would bust out laughing.. it was sooo cute.. and of course Kayla thought she was the bomb diggity! :)

"kiss"

"hug"

A loving Kayla- she has been great since we have been home- more like herself.  She has her moments- I think she is scared to poop (maybe pushing hurts?) and I don't think she likes to cough.  :( But she's doing great otherwise.  She has had some difficulty sleeping- maybe she got used to the wake ups at the hospital and expects to be woken?? Or maybe she's dreaming about the surgery??  But she wakes up screaming and crying- last night Jer went in to rock her, and a couple hours later, I did too.  I feel awful for her... hoping she sleeps a little better tonight.  Nap times have been great for her- they too seemed to always be interrupted.. so hopefully it will calm down for her soon.